Kathleen Hanna: “Queen of the Riot Grrrls”
One of the most striking scenes in the movie is where Adam films you after you’ve taken some medication, and we see the side effects kick in. You’re in a really vulnerable state. I completely understand if you’d rather not go into the gory details, but because it’s not a disease a lot of people are too familiar with, could you talk a bit about some of the worst days struggling with it? It was way worse than that scene. That was nothing. If it goes long enough, Lyme disease can get into your brain and become neurological, and in my case, I have neurological Lyme. So I would have a lot of seizures. And I would go like this [jerks both of her shoulders back] over and over. It’s like a body twitch, a form of a seizure. My symptoms would change over time. I would have really bad arthritis in my legs. I would talk like I was having a stroke or like I was drunk. And the time in January of 2010 or 2011, it got to the point where I was having several seizures a day, and I was crawling to the bathroom. I couldn’t walk. I could only crawl.